We're here. Houston seems a little smaller this time around, maybe we just don't feel quite so out of place. Channel 2 came to Texas with us on the same flight. We turn quite a few heads walking through airports considering we have Davey in his wheelchair, and a cameraman and reporter documenting our every move. After getting up so early that even the feral peacocks in our neighborhood weren't awake, we had stops in Phoenix, and El Paso, and were then met at the Houston airport by some close friends who took us straight to the hospital. We were welcomed there by our wonderful team. After more ultrasounds, paperwork, consults, and doctor visits we're ready for bed. I'm scared, getting the IV was awful--nurses never believe me until they see me in action. Matt reassures me that I did beautifully, I wasn't even close to passing out according to him, but I'm not so sure. Seeing my mom, nieces, and nephews helped to ease the pain. Davey is the best caregiver of all. He keeps telling me it's okay to cry. Nervous, scared, miss my girls. So grateful to so many angels in our lives. Everything is going to be fine, I know it.
On Thursday night, I couldn't get rid of a nagging concern. Maggie's eyes were sunsetting. This is where the eyes turn downward with the white showing above. It wasn't constant, and she wasn't showing the typical signs associated with brain swelling. But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens. He wasn't too concerned and told me to come on Friday for spina bifida clinic. Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him. But I didn't want to go to Houston next week until I knew for sure she was okay. So he ordered a head ultrasound. Sure enough, the ultrasound showed significant swelling in the ventricles of her brain. A shunt is needed. Poor Maggie. I hate to see her go through another surgery. When I'm at the docs office and get bad news, I try to act brave and wait until the car r
Seeing yall today was so wonderful. We left feeling uplifted, inspired and so unbelievably lucky to be able to claim your friendship. You are all in our prayers, especially Amazing Millie and sweet little Maggie.
ReplyDeleteOhhhh! I love him..I love you! Why am I not there!!! Praying for you all day. oxo
ReplyDeleteHang in there! Praying for you all!
ReplyDeleteOh Millie! I can relate! I hated everything they did to prep me for my c-sections. You are strong and I know you'll do great. Thinking of you and praying for you.
ReplyDeleteWe love you. You are in our prayers & we'll be thinking of you all day tomorrow, praying that everything will go smoothly and beautifully.
ReplyDeleteWe are praying too! Davey looks like such a great caregiver...he is welcome to take care of me anytime! Such a sweetheart. Good job not passing out...Kyle usually does that for me.
ReplyDeleteYou will do awesome!!
Ahhh, that pic of you and Davey is so sweet!! You are going to do amazing, like you always do with everything else! Good luck honey, our thoughts and prayers are with you of course!!!!
ReplyDeleteMil, I bet in Heaven we were told that one of us was going to have to be cut wid open, endure a cath for several days and have our calcium sucked out. Thank you for saying, "fine, I will."
ReplyDeleteSweet picture with Davey. Love you much.
ReplyDeleteI love the picture of you and Davey, so sweet! I will be praying for you tonight and all day tomorrow.
ReplyDeleteHi, this is Cindy Routsons sister... She has been telling me all about your story. Good luck tomorrow! We will be praying for you from Las Vegas! Good luck!
ReplyDeleteI love that last picture. So sweet! We will be praying for you!
ReplyDeleteGood luck!! Your so amazing!! I'm praying for you!!
ReplyDeleteWay to stay strong on the IV thing. You've come a long way from the Canyon High School Blood drive.
ReplyDeleteLove the picture of you two...both so beautiful!
Good luck!! We're praying for you!
good luck today!!! boy do I love that Davey :)
ReplyDeleteGood luck! Thinking of you!
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