Get used to the Stairs

I asked Matt what to write for the post. This was his reply, "Surgery went well. Blah, blah blah." He's so eloquent. The plastic surgeon, Dr. Faizi Siddiqi, said things seem good. Now that the infection is gone, the back will hopefully heal in a couple weeks. The grossest part is the two drainage tubes coming out of her back. I love little Maggie, but those tubes stretch my limits of affection. Every time we move her, it looks like they are going to slide out. She'll have them in for a couple days to drain any puss/fluids that might build up under her skin. It's tough to see her corded up again. Of course we can handle it, but it's hard. And she needs a bath! She's never had one and it's starting to catch up with her. My hope is that our posts are helpful for other families with spina bifida kids. Reading other blogs has been a great resource for us. When your pregnant with a child with spina bifida, it's hard to know what to ...

Maggie's back is not healing well.  On Sunday we noticed that it was separating in the middle where the skin is stretched the most.  Each day, the middle opens more and more. On Tuesday morning, we took Maggie to Primarys to have the plastic surgeon look at it.  He was concerned, but still had hope that it would heal itself.  Later that day, it looked even worse!  Then stitches started coming detached and yellow pussiness oozed out!  So today we ran up to Primarys again and the plastic surgeon said it is infected.  We're hoping that the high dose of antibiotics will clear up the infection by Monday.  That's when we will have another surgery to close up the opening.  We hope this will work and her back will finally heal.  But we are skeptical.  How will restitching it make it stay closed when it didn't work the first time?  The doc reassures us that it is just the top layer that they'll have to redo, and since it wo...

Maggie's adorable hospital gown After surgery, sleeping soundly Her new back Giraffe spots from the leads Tummy time with big sister Maggie continues to exceed all of our expectations. After a successful surgery yesterday we were expecting at least two or three days in the hospital. She did so well with her feeding and pain management that the doctors said there was no reason to make us stay any longer. We brought her home this afternoon. Posted with Blogsy