Skip to main content

Day Two

Millie's been out of surgery now for about 47 hours. She had a good night last night and has seen all three of the pediatric surgeons this morning. They all say she's doing just great. Today's a big day. They've already removed her epidural and she's started taking pain medication by mouth. She's experiencing a lot of pain and occasional mild contractions but she keeps enduring. Every contraction scares us, but the doctors reassure us that it's normal at this point because the uterus has been through so much. Millie had solid foods for breakfast and will need to get up later today for a shower. She faces every new challenge with her characteristic humor and courage.



Labels:

Comments

  1. UnknownApril 26, 2012 at 11:10 AM

    Millie you are seriously amazing!!! Thanks for all the great updates Matt - you are amazing too!! Love you guys!! Terelyn

    ReplyDelete
  2. AApril 26, 2012 at 11:34 AM

    Matt and Millie, we love you so much! The kids, Quang and I are keeping you in our thoughts. I even mobilized my work to contact EMI last week and I like to think it helped. Even my Dad texted to find out an update so we are all rooting for your family and are here for whatever you need.

    Abby

    ReplyDelete
  3. erica eApril 26, 2012 at 12:27 PM

    hooray for one less wire sticking out of your body! and double hooray for solid foods!

    ReplyDelete
  4. The momApril 27, 2012 at 11:03 AM

    You guys are so sweet to share so much of your personal life! You are loved by so many. You are in our daily thoughts and prayers! Thank you for letting us all know how you are doing and how things are coming! We love and are amazed by your strength ! Love Ruth Wilkey

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...
7 comments
Read more

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to a...
17 comments
Read more

Flippidy Floo Flah Folic

Last time I was at Shriners, one of the doctors asked if I had checked my folic acid levels after having Davey.  I responded that I'd never heard of anything like that and had not checked them.  The doctor then proceeded to say she had spoken with a geneticist about our family...two kids with spina bifida.  The geneticist said that I most likely don't metabolize folic acid properly, so that's why my last two children have spina bifida.  In summary, they thought that if I had checked my folic acid levels after Davey, I would have seen that something was wrong and could have prevented Maggie from having spina bifida.  As I listened to these burning words, I thought, "Do you know what you're saying?"  I turned away, bounced with Maggie, and wiped my tears. I'm often asked about folic acid.  It's an integral part of spina bifida prevention , and I should lecture about how everyone should take their folic pills.   But I'm not in t...
20 comments
Read more