Millie's been out of surgery now for about 47 hours. She had a good night last night and has seen all three of the pediatric surgeons this morning. They all say she's doing just great. Today's a big day. They've already removed her epidural and she's started taking pain medication by mouth. She's experiencing a lot of pain and occasional mild contractions but she keeps enduring. Every contraction scares us, but the doctors reassure us that it's normal at this point because the uterus has been through so much. Millie had solid foods for breakfast and will need to get up later today for a shower. She faces every new challenge with her characteristic humor and courage.
On Thursday night, I couldn't get rid of a nagging concern. Maggie's eyes were sunsetting. This is where the eyes turn downward with the white showing above. It wasn't constant, and she wasn't showing the typical signs associated with brain swelling. But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens. He wasn't too concerned and told me to come on Friday for spina bifida clinic. Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him. But I didn't want to go to Houston next week until I knew for sure she was okay. So he ordered a head ultrasound. Sure enough, the ultrasound showed significant swelling in the ventricles of her brain. A shunt is needed. Poor Maggie. I hate to see her go through another surgery. When I'm at the docs office and get bad news, I try to act brave and wait until the car r
Millie you are seriously amazing!!! Thanks for all the great updates Matt - you are amazing too!! Love you guys!! Terelyn
ReplyDeleteMatt and Millie, we love you so much! The kids, Quang and I are keeping you in our thoughts. I even mobilized my work to contact EMI last week and I like to think it helped. Even my Dad texted to find out an update so we are all rooting for your family and are here for whatever you need.
ReplyDeleteAbby
hooray for one less wire sticking out of your body! and double hooray for solid foods!
ReplyDeleteYou guys are so sweet to share so much of your personal life! You are loved by so many. You are in our daily thoughts and prayers! Thank you for letting us all know how you are doing and how things are coming! We love and are amazed by your strength ! Love Ruth Wilkey
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