Skip to main content

Baby Steps



The physical therapist came by to help Millie get out of bed. It's been a difficult afternoon as Millie's body transitions from the epidural pain medication to the meds she's taking orally. She's finally feeling like the pain is somewhat under control but I know she's being really tough. The doctors told her not to be a martyr but to make sure to stay on top of the pain by taking her medication every four hours. As bad as she's felt the past few hours I don't think that will be a challenge for her. She was a champ with the walker, Davey was especially impressed. He may have felt like she was stealing some of his thunder though as he began to really step up his game on his wheelchair whenever the nurses or therapists came in. He really is the expert on those devices in our family. Davey and I will be heading back to Millie's brother's house soon and her mom will stay with her for the rest of the night.


Labels:

Comments

  1. StephanieApril 26, 2012 at 2:03 PM

    Im so glad to see that things are going well. You are in our prayers

    ReplyDelete
  2. angeeApril 26, 2012 at 2:07 PM

    So glad things are going well!! And, oh Davey! Love that story about him. He's just too cute and makes me smile! Love that kid.

    Thanx for all the updates!

    ReplyDelete
  3. HilApril 26, 2012 at 2:13 PM

    Way to rock the wheel chair Davey! I wish Millie didn't have to go through so much pain and am praying the pain meds do their work. Thanks again for the updates, they make my day as I have you all in my thoughts on a constant basis!

    ReplyDelete
  4. elshmobelshApril 26, 2012 at 3:00 PM

    So great to see Millie's progress. You go girl!!!

    ReplyDelete
  5. CaptainJayApril 27, 2012 at 10:43 AM

    Davey is the man! Props to him for showing his skills. Matt, you should clear the hallways for some races.
    So glad to see Millie improvements. Thanks for keeping us posted, Matt.

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...
7 comments
Read more

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to a...
17 comments
Read more

Flippidy Floo Flah Folic

Last time I was at Shriners, one of the doctors asked if I had checked my folic acid levels after having Davey.  I responded that I'd never heard of anything like that and had not checked them.  The doctor then proceeded to say she had spoken with a geneticist about our family...two kids with spina bifida.  The geneticist said that I most likely don't metabolize folic acid properly, so that's why my last two children have spina bifida.  In summary, they thought that if I had checked my folic acid levels after Davey, I would have seen that something was wrong and could have prevented Maggie from having spina bifida.  As I listened to these burning words, I thought, "Do you know what you're saying?"  I turned away, bounced with Maggie, and wiped my tears. I'm often asked about folic acid.  It's an integral part of spina bifida prevention , and I should lecture about how everyone should take their folic pills.   But I'm not in t...
20 comments
Read more