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Change of Plans

Surgery has been moved to Tuesday. Not cool. Basically, there are so many specialists involved and Tuesday was when everyone could get together.  Just wish we would have known before today.

I miss Kate and Josie, and it's only going to get harder. If I had known the surgery would be delayed 5 days then I think we might have tried to fly them out with us. We Skype every night and they are having so much fun with their Nana and Pa.

We did meet with the neurosurgeon today, Dr. Fletcher. He'll be the one to sew up our daughters back. Wow, he a character!  He shook Matt's hand upon entering the room, but didn't acknowledge my hand outstretched. Awkward...at least for me. Then for the first 10 minutes he only made eye contact with Matt.  It was like I wasn't even in the room. Matt knew exactly what I was thinking and elbowed me. Then Dr. Fletcher asked as if he was shocked, "Why are you doing this surgery in Houston and not San Francisco?"  Not the most reassuring question. He is a pilot and dog brain surgeon on the side. Anyway, I'm sure he is good at what he does. But it was odd on many levels. Ruff ruff.

After that, we met with the pediatric surgeons again. That's when they told us about the surgery on Tuesday. We went over more details of the surgery. I also did another ultrasound because the amniotic fluid is a bit lower than they would like. One thing we visited about is how I'll be the first mom to have a child with Spina Bifida who hasn't had the surgery and one who will have the surgery. The geneticist is excited to get her hands on my blood. I feel so special.

Comments

  1. Millie---I have been thinking about you so much lately and have wanted to know how you were doing and what is going on---I am SO glad you are doing this blog! I just read everything and bawled. I was thinking about in general conference one of the apostles (can't remember who, I am so lame) said that something to the effect of "offering to help others, and actually helping others are two different things". I thought of you when he said that and how I have wanted to help but didn't know how. Anyways, I just wanted to know I think of you often and I am sending good vibes your way.
    Danielle Toomer

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  2. We love you guys so much! You and Matt are so wonderful! Your blog is amazing....thank you for sharing it with us :) Sending you our prayers and hugs!

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  3. So glad your documenting this Millie. I've been thinking about you a lot. Hang in there! We are praying.

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  4. Well, it's nice to know you have such a well rounded doc.taking care of you! even if he does it all with Matt in mind. :)

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  5. Millie, You've been in our prayers. I'm so glad that you are surrounded by so many people that love you. I wish I were closer so I could come to visit you.

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  6. Millie, I can't imagine going through what you are experiencing right now. You are truly amazing, and always have been. I wanted you to know that I am thinking about you and praying for you. We absolutely love your family, and are so grateful to everything you both have done for us. You will continue to be in our prayers.

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