Skip to main content

The Wedding is Still On!

Coming home today felt like we were calling off a big wedding.  Telling the guests to go home and pick up their gifts as they exit.

Then we walked off the airplane and found ABC4 News there filming us.  Yikes!  The story aired tonight, and they did a great job covering the facts and explaining the situation.

So the wedding is not off, and we are still fighting.  Our hope tomorrow is that we will hear the good news.  We will hear that the Educators Mutual has agreed to cover the surgery.

Are we grateful enough?  Thank you.  Thank you.

http://www.abc4.com/content/news/top_stories/story/Utah-parents-battle-insurance-over-Spina-Bifida/DAOusr3WRUuraDIEzk2Aiw.cspx

http://s1235.photobucket.com/albums/ff438/milliekillpack/?action=view&current=UtahparentsbattleinsuranceoverSpinaBifidasurgery.mp4


Comments

  1. The piece on ABC was awesome. I hope the insurance company caves to pressure and their conscience. We're still praying for you guys.

    -marc and family

    ReplyDelete
  2. Millie Kay...what a beautiful analogy. I think that when the wedding happens, there will be more 'guests' than we had originally planned that will share in the celebration! Thank you all for your support.

    ReplyDelete
  3. Hi, I heard about your story through USB. I am a SB mommy too. I sent an email to the insurance company after calling and commented on the news page. I hope things get cleared up and your little girl gets the best care possible!

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...

Curve Ball

Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri...

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy