Millie's night was long and uncomfortable. Her wonderful mother stayed with her while I went to her brother's house to be with Davey. I'm so grateful for Davey's aunt and uncle and cousins who are so attentive to him. He's been pretty grouchy, I think these past few days have been a bit trying for him. During the night amidst the frequent medication administrations, position changes, and vital signs monitoring Millie started experiencing some mild contractions. Her blood pressure was also dropping too low. The doctors didn't seem too concerned and were able to regulate things with some medication adjustments. Now her vitals all look good and Maggie's are all stable as well. Because of the combination of all the meds she has to be on she feels hot and itchy and generally in a haze. She can't open her eyes without great effort and it's difficult for her to talk. Channel 2 did one last interview with her before heading back to Salt Lake and she was incredible. The doctors will start taking her off certain medications by this afternoon and hopefully she'll start feeling better. Everything is still going as expected and everyone who meets Millie loves her.
Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri
Who wouldn't love Millie?? It breaks my heart to hear of the struggles she had last night, but am grateful things are looking up today. She and Maggie continue to be in my constant thoughts and prayers.
ReplyDeleteThank you for keeping us updated. So glad things are going so well thus far. You all are amazing!
ReplyDeleteThanks for the update. We were thinking of you guys all day yesterday and will continue to keep you in our prayers.
ReplyDeleteThanks for the update Matt. You guys are truly amazing. And really, who could't like Millie! Love you guys.
ReplyDeleteLove, Camille and family
We're all praying for you guys! Stay positive, give Millie a squeeze from us--xoxo Scott & Natalie Tidwell
ReplyDeleteWe want pictures! Her fans demand pictures!
ReplyDeleteMatt, it is not new that everyone that meets her loves her but you are in that category too. Love you all!!! Thanks for the updates:).
ReplyDeleteThanks so much for taking over the posting Matt! It's so good to know what is going on. We are constantly thinking of you guys and praying for you. Glad Millie is still her same spunky self! :)
ReplyDeleteLove love love you ALL! Miss you, praying for you always...big hugs!
ReplyDeleteAwesome news!1 Thank you so much for keeping us all up to date. I know that many thoughts and prayers have been said for her and Maggie. We will keep praying. Love, Bri
ReplyDeleteMillie,
ReplyDeleteI haven't ever met you but continue to be touched by your story. When I seen it on the news I felt strongly that I should contact your insurance company and share our story.I did and they were very kind. We were part of the MOMS trial .We had fetal surgery on our son at USCF in 2009. It made such a huge difference for us. Our son was a worst case scenario and now you wouldn't even know that he has spina bifida. I made it 35 weeks. The first few weeks are tough but the worst part is over. Just stay on bed rest and you will be able to hit that 37 week mark. I will continue to pray for you and your darling family. If you have any questions on what to expect now that surgery is over you can contact me at jessicamadsen@hotmail.com. Your a rockstar! Way to fight for what you want I wish the best for Baby Maggie.