Skip to main content

Long Night

Millie's night was long and uncomfortable. Her wonderful mother stayed with her while I went to her brother's house to be with Davey. I'm so grateful for Davey's aunt and uncle and cousins who are so attentive to him. He's been pretty grouchy, I think these past few days have been a bit trying for him. During the night amidst the frequent medication administrations, position changes, and vital signs monitoring Millie started experiencing some mild contractions. Her blood pressure was also dropping too low. The doctors didn't seem too concerned and were able to regulate things with some medication adjustments. Now her vitals all look good and Maggie's are all stable as well. Because of the combination of all the meds she has to be on she feels hot and itchy and generally in a haze. She can't open her eyes without great effort and it's difficult for her to talk. Channel 2 did one last interview with her before heading back to Salt Lake and she was incredible. The doctors will start taking her off certain medications by this afternoon and hopefully she'll start feeling better. Everything is still going as expected and everyone who meets Millie loves her.

Comments

  1. Who wouldn't love Millie?? It breaks my heart to hear of the struggles she had last night, but am grateful things are looking up today. She and Maggie continue to be in my constant thoughts and prayers.

    ReplyDelete
  2. Thank you for keeping us updated. So glad things are going so well thus far. You all are amazing!

    ReplyDelete
  3. Thanks for the update. We were thinking of you guys all day yesterday and will continue to keep you in our prayers.

    ReplyDelete
  4. Thanks for the update Matt. You guys are truly amazing. And really, who could't like Millie! Love you guys.
    Love, Camille and family

    ReplyDelete
  5. We're all praying for you guys! Stay positive, give Millie a squeeze from us--xoxo Scott & Natalie Tidwell

    ReplyDelete
  6. We want pictures! Her fans demand pictures!

    ReplyDelete
  7. Matt, it is not new that everyone that meets her loves her but you are in that category too. Love you all!!! Thanks for the updates:).

    ReplyDelete
  8. Thanks so much for taking over the posting Matt! It's so good to know what is going on. We are constantly thinking of you guys and praying for you. Glad Millie is still her same spunky self! :)

    ReplyDelete
  9. Love love love you ALL! Miss you, praying for you always...big hugs!

    ReplyDelete
  10. Awesome news!1 Thank you so much for keeping us all up to date. I know that many thoughts and prayers have been said for her and Maggie. We will keep praying. Love, Bri

    ReplyDelete
  11. Millie,
    I haven't ever met you but continue to be touched by your story. When I seen it on the news I felt strongly that I should contact your insurance company and share our story.I did and they were very kind. We were part of the MOMS trial .We had fetal surgery on our son at USCF in 2009. It made such a huge difference for us. Our son was a worst case scenario and now you wouldn't even know that he has spina bifida. I made it 35 weeks. The first few weeks are tough but the worst part is over. Just stay on bed rest and you will be able to hit that 37 week mark. I will continue to pray for you and your darling family. If you have any questions on what to expect now that surgery is over you can contact me at jessicamadsen@hotmail.com. Your a rockstar! Way to fight for what you want I wish the best for Baby Maggie.

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...

Curve Ball

Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri...

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy