Skip to main content

Long Night

Millie's night was long and uncomfortable. Her wonderful mother stayed with her while I went to her brother's house to be with Davey. I'm so grateful for Davey's aunt and uncle and cousins who are so attentive to him. He's been pretty grouchy, I think these past few days have been a bit trying for him. During the night amidst the frequent medication administrations, position changes, and vital signs monitoring Millie started experiencing some mild contractions. Her blood pressure was also dropping too low. The doctors didn't seem too concerned and were able to regulate things with some medication adjustments. Now her vitals all look good and Maggie's are all stable as well. Because of the combination of all the meds she has to be on she feels hot and itchy and generally in a haze. She can't open her eyes without great effort and it's difficult for her to talk. Channel 2 did one last interview with her before heading back to Salt Lake and she was incredible. The doctors will start taking her off certain medications by this afternoon and hopefully she'll start feeling better. Everything is still going as expected and everyone who meets Millie loves her.

Comments

  1. Who wouldn't love Millie?? It breaks my heart to hear of the struggles she had last night, but am grateful things are looking up today. She and Maggie continue to be in my constant thoughts and prayers.

    ReplyDelete
  2. Thank you for keeping us updated. So glad things are going so well thus far. You all are amazing!

    ReplyDelete
  3. Thanks for the update. We were thinking of you guys all day yesterday and will continue to keep you in our prayers.

    ReplyDelete
  4. Thanks for the update Matt. You guys are truly amazing. And really, who could't like Millie! Love you guys.
    Love, Camille and family

    ReplyDelete
  5. We're all praying for you guys! Stay positive, give Millie a squeeze from us--xoxo Scott & Natalie Tidwell

    ReplyDelete
  6. We want pictures! Her fans demand pictures!

    ReplyDelete
  7. Matt, it is not new that everyone that meets her loves her but you are in that category too. Love you all!!! Thanks for the updates:).

    ReplyDelete
  8. Thanks so much for taking over the posting Matt! It's so good to know what is going on. We are constantly thinking of you guys and praying for you. Glad Millie is still her same spunky self! :)

    ReplyDelete
  9. Love love love you ALL! Miss you, praying for you always...big hugs!

    ReplyDelete
  10. Awesome news!1 Thank you so much for keeping us all up to date. I know that many thoughts and prayers have been said for her and Maggie. We will keep praying. Love, Bri

    ReplyDelete
  11. Millie,
    I haven't ever met you but continue to be touched by your story. When I seen it on the news I felt strongly that I should contact your insurance company and share our story.I did and they were very kind. We were part of the MOMS trial .We had fetal surgery on our son at USCF in 2009. It made such a huge difference for us. Our son was a worst case scenario and now you wouldn't even know that he has spina bifida. I made it 35 weeks. The first few weeks are tough but the worst part is over. Just stay on bed rest and you will be able to hit that 37 week mark. I will continue to pray for you and your darling family. If you have any questions on what to expect now that surgery is over you can contact me at jessicamadsen@hotmail.com. Your a rockstar! Way to fight for what you want I wish the best for Baby Maggie.

    ReplyDelete

Post a Comment

Popular posts from this blog

Building a Utah Valley Parade of Home

Our home is complete (mostly), and we are thrilled!  It makes my heart flutter every time we pull up. This home is the fulfillment of a dream, full of beauty and accommodation.  Davey zooms up and down the ramps with freedom.  We all have our "favorite parts" of the home, and I can't narrow mine down to one.

The Parade of Homes is happening now, and every day I get questions from friends, family and strangers asking about the parade process and where we purchased things.  I'll answer some of them on the blog.  Keep in mind, this is just our experience.  I'm sure it is different for everyone.

Why did we build a parade home? ·Some of the subcontractors offered a discount price because their products or work would be featured.  It doesn’t necessarily mean it is cheaper to build a parade home, but it is possible to get more for your money.  For example, appliances.  We wouldn’t normally buy Bosch appliances, but with parade discounts the fancier appliances were the …

Surgery and Nursery

Can't sleep.  Spina bifida does that sometimes!  On Tuesday Davey will have surgery at Shriners Hospital.  Some call the surgery a bilateral tibial rotational osteotomy.   I refer to it as fixing the feet forward.  Here's how he walks now.  See how he trips on his feet because they turn inward.  That's a result of being born with clubbed feet.  Hopefully in two months after his casts have been removed, his feet will face forward.   This is Davey's 8th surgery (I think).  It's difficult to know how he processes the thoughts of surgery.   He is most excited to have a slumber party with his dad at the hospital, and for his Papa from Texas to come and sword fight with him.  It's been a long time since Matt and I had one of our kiddos in an operating room...over a year.  I've appreciated the break and pray the doctors will have skill, wisdom, compassion and clarity as they care for my little boy.  
My heart is really heavy concerning Maggie.  Spina bifida does …

Cross-eyed Cuteness

Written by Matt.

We've had lots of appointments this week.

Thursday:  Millie and Maggie went to the Primary Children's in Riverton for an ultrasound on the kidneys and brain for Maggie.  Everything looked good. 
Friday:  Maggie's first follow up since her shunt surgery.  To us, she seems to be doing quite well except for her eyes crossing.  But as soon as the neurosurgeons saw Maggie, they said she needed to get an MRI.  He felt that it was urgent enough to do the scan that same day, but Millie was too sick to stay at the hospital and was lucky to drive home without crashing.  If you’ve never heard Millie crow up,  you’re missing out (it’s a mix between coughing and throwing up).  And we did an ultrasound on Davey's kidneys that day.  
Saturday:  The MRI.  Millie was still too sick to go to the hospital, so just Maggie and I went.  Maggie was charming as usual even on the required empty stomach and made instant friends with all the nurses and technicians.  I stayed wi…