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We got a call at 4:59 p.m. on Friday saying that our insurance has denied the surgery.  The reason: it's experimental.  Dumb.  It's not experimental.  The MOMS trial has been over for a year and has proven to result in significant increase for mobility and decrease of shunts.   If I was on Medicaid, then it would be completely covered.  So, I check into the hospital on Monday not knowing if this is going to be covered.  The hospital is doing all they can to prove that it is medically necessary, or so they say.  Why is it always a battle?

So what is this worth?  Can we put a price tag on it?  Can Matt and I say, "We aren't doing this because we don't want to be in debt the rest of our lives?"

I slept restlessly last night as I went over and over these questions and many more.  How does Matt sleep so soundly?  Again, he's the steady one that repeats, "Move forward with faith."


  1. I think such horrible things about insurance companies. Thoughts and words that my bishop shouldn't know go through my head- so I will keep my thoughts to myself.

  2. Omg, Mil. Bad words for those loo-sers. Maybe you should play it up on your Tv interview, and to avoid bad press they will have to cover you!

  3. Oh, Millie, that is a worry you certainly don't need right now. I am so sorry that you have to deal with that on top of everything else. Please know that we are praying and fasting for you guys. Love you!!!

  4. Totally lame. I'm so sorry. But Matt is right and that's why he is there with you..."move forward with faith". Love your blog. Thank you for doing it so we can feel a little closer to you on this journey. Love you, Mil.

  5. Yes. Don't worry! It will all work out. You know in your heart it will. I love you and your sweet family.

  6. What?! Oh Millie I am so sorry you guys are having to deal with this on top of everything else. How awful. I am certain that all will work out and am amazed by you and Matt's unwavering faith. Sending lots of hugs and prayers your way.


  7. Positive thoughts and sending faith your way! All will be well! Praying for you and baby girl for tomorrow's surgery! Focus on: 20% and 37 weeks!!!! I LOOOOOOOVE YOU! xoxoxoxoxoxo Sarah


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