Skip to main content

Day Three

Millie had a difficult night. It's been tough getting on top of the pain that she's feeling. She tries to keep a brave front, but one of the surgeons came to check on her and she just broke down. He was so kind. The head nurse came in and kept asking Millie if she could make her some hot tea, or cold tea to calm her stomach. Millie was so touched but had to say, "I don't drink hot tea," then "I don't drink cold tea." The sweet nurse said, "I've got to make you something!" and came back with hot apple juice. The medical staff has been so amazing. We keep expressing our gratitude to them. They (like so many of you) will never truly know just how touched we are by their actions.







Finally this morning Mill's body has started responded well to the oral pain medications and she has been able to rest more peacefully. Her mom helped her put on some makeup and do her hair. Millie was so happy to feel somewhat normal after a few days of complete abnormality. Davey and I have been touring the hospital--it's hard to convey the sense of how big things are here. Children's Memorial Hermann Hospital is just one of what seems like a million hospitals that extend down the street for blocks and blocks. This place is amazing.





Labels:

Comments

  1. Amy SeelyApril 27, 2012 at 11:51 AM

    I'm sorry it hurts, Mill! Love you!

    ReplyDelete
  2. Jared SterzerApril 27, 2012 at 12:51 PM

    Millie so glad the surgery went well. You and your family are in my prayers.

    ReplyDelete
  3. angeeApril 27, 2012 at 12:51 PM

    It's amazing what hair and make-up will do for our spirits, huh?!

    Hang in there, Millie! Love you! Praying for you!

    ReplyDelete
  4. HilApril 27, 2012 at 1:41 PM

    Ugh, those dreaded night times. Hopefully she will have a better night tonight! That hospital sounds and looks amazing. As amazing as it is, I hope you guys aren't there for too much longer. :) Thinking of and praying for you always! Much love.

    ReplyDelete
  5. AshlieApril 27, 2012 at 2:22 PM

    Hang in there Millster! It's amazing what makeup and hair can do to make you feel "normal" sometimes when you're living in a hospital! Your Mom is a sweetheart.

    ReplyDelete
  6. CaptainJayMay 2, 2012 at 8:51 AM

    It's fun to see the Texas flag up there! That medical part of town is pretty big, isn't it?

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...
7 comments
Read more

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy
27 comments
Read more

Curve Ball

Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri...
24 comments
Read more