Skip to main content

Surgery Tomorrow

Tomorrow at noon is Maggie's surgery on her back. Tonight we are spending family time up at Primary Children's while Maggie gets blood work done. Just walking into the lab makes me light headed. I look around and see vials and needles, faint. I'll be sending Matt back with her for the actual poke.

I hate that we won't be together as a family tomorrow night. Life has been unhinged for months now, and I'm just tired of it. There's my complaining.

Matt's parents, my sister and friends are so great to help with the K, J, & D. This has been a great summer for the kids...always having sleep overs and fun outings. I've heard about twenty times today, "I'm bored."

 Is it bedtime yet?





Comments

  1. Our prayers and hearts are still with you!

    ReplyDelete
  2. That is the sweetest picture of Maggie. Randy and I both love it! Hope all goes well tomorrow with her surgery.

    ReplyDelete
  3. Sweet, sweet family! Love you!

    ReplyDelete
  4. Thoughts and prayers your way. Love those squishy kissable cheeks and oh so adorable toes!

    ReplyDelete
  5. Thinking of you guys and cute little Maggie! Hope all goes well!...ps....wish my kids would ask if its bed time yet!:)

    ReplyDelete
  6. We are praying that all goes well! Good Luck! We love the pictures of the kids!
    Love, the Hanna's

    ReplyDelete
  7. I LOVE the picture of Maggie sleeping on the blanket. Such a sweetie. Good luck with the surgery.

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy

Flippidy Floo Flah Folic

Last time I was at Shriners, one of the doctors asked if I had checked my folic acid levels after having Davey.  I responded that I'd never heard of anything like that and had not checked them.  The doctor then proceeded to say she had spoken with a geneticist about our family...two kids with spina bifida.  The geneticist said that I most likely don't metabolize folic acid properly, so that's why my last two children have spina bifida.  In summary, they thought that if I had checked my folic acid levels after Davey, I would have seen that something was wrong and could have prevented Maggie from having spina bifida.  As I listened to these burning words, I thought, "Do you know what you're saying?"  I turned away, bounced with Maggie, and wiped my tears. I'm often asked about folic acid.  It's an integral part of spina bifida prevention , and I should lecture about how everyone should take their folic pills.   But I'm not in t...