Maggie continues to exceed all of our expectations. After a successful surgery yesterday we were expecting at least two or three days in the hospital. She did so well with her feeding and pain management that the doctors said there was no reason to make us stay any longer. We brought her home this afternoon.
Josie was reluctant to go to school today. Friday was her "worstest day ever" of kindergarten. According to her account, nobody would play with her at recess. "I would ask different girls but they said they wanted to play with somebody else." Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack. I asked Josie how she reacted. Her response, "I just sat in the corner." When Matt heard the story he said, "Nobody puts Josie in a corner." Just like Patrick Swayze. I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten.
Speaking of surgery, we are still in limbo for Maggie's surgery...ETV-CVF. We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed. We don't know what to do! This little Ma…
Our home is complete (mostly), and we are thrilled! It makes my heart flutter every time we pull up. This home is the fulfillment of a dream, full of beauty and accommodation. Davey zooms up and down the ramps with freedom. We all have our "favorite parts" of the home, and I can't narrow mine down to one.
The Parade of Homes is happening now, and every day I get questions from friends, family and strangers asking about the parade process and where we purchased things. I'll answer some of them on the blog. Keep in mind, this is just our experience. I'm sure it is different for everyone.
Why did we build a
parade home? ·Some of the subcontractors offered a discount price because their products or work would be featured. It doesn’t
necessarily mean it is cheaper to build a parade home, but it is possible to get more for
your money. For example, appliances. We wouldn’t normally buy
Bosch appliances, but with parade discounts the fancier appliances were the …
On Thursday night, I couldn't get rid of a nagging concern. Maggie's eyes were sunsetting. This is where the eyes turn downward with the white showing above. It wasn't constant, and she wasn't showing the typical signs associated with brain swelling. But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens. He wasn't too concerned and told me to come on Friday for spina bifida clinic. Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him. But I didn't want to go to Houston next week until I knew for sure she was okay. So he ordered a head ultrasound. Sure enough, the ultrasound showed significant swelling in the ventricles of her brain. A shunt is needed.
Poor Maggie. I hate to see her go through another surgery. When I'm at the docs office and get bad news, I try to act brave and wait until the car ri…