Maggie continues to exceed all of our expectations. After a successful surgery yesterday we were expecting at least two or three days in the hospital. She did so well with her feeding and pain management that the doctors said there was no reason to make us stay any longer. We brought her home this afternoon.
Our home is complete (mostly), and we are thrilled! It makes my heart flutter every time we pull up. This home is the fulfillment of a dream, full of beauty and accommodation. Davey zooms up and down the ramps with freedom. We all have our "favorite parts" of the home, and I can't narrow mine down to one.
The Parade of Homes is happening now, and every day I get questions from friends, family and strangers asking about the parade process and where we purchased things. I'll answer some of them on the blog. Keep in mind, this is just our experience. I'm sure it is different for everyone.
Why did we build a
parade home? ·Some of the subcontractors offered a discount price because their products or work would be featured. It doesn’t
necessarily mean it is cheaper to build a parade home, but it is possible to get more for
your money. For example, appliances. We wouldn’t normally buy
Bosch appliances, but with parade discounts the fancier appliances were the …
Thursday: Millie and Maggie went to the Primary Children's in Riverton for an ultrasound on the kidneys and brain for Maggie. Everything looked good.
Friday: Maggie's first follow up since her shunt surgery.
To us, she seems to be doing quite well except for her eyes crossing. But as soon as the neurosurgeons saw Maggie, they said she needed to get an MRI. He felt that it was urgent enough to do the scan that same day, but
Millie was too sick to stay at the hospital and was lucky to drive home
without crashing. If you’ve never heard
Millie crow up, you’re missing out (it’s a mix between coughing and throwing up). And we did an ultrasound on Davey's kidneys that day.
Saturday: The MRI. Millie was still too sick to go to the hospital, so just Maggie and I went. Maggie was charming as usual even on the required empty stomach and made
instant friends with all the nurses and technicians. I stayed wi…
Can't sleep. Spina bifida does that sometimes! On Tuesday Davey will have surgery at Shriners Hospital. Some call the surgery a bilateral tibial rotational osteotomy. I refer to it as fixing the feet forward. Here's how he walks now. See how he trips on his feet because they turn inward. That's a result of being born with clubbed feet. Hopefully in two months after his casts have been removed, his feet will face forward. This is Davey's 8th surgery (I think). It's difficult to know how he processes the thoughts of surgery. He is most excited to have a slumber party with his dad at the hospital, and for his Papa from Texas to come and sword fight with him. It's been a long time since Matt and I had one of our kiddos in an operating room...over a year. I've appreciated the break and pray the doctors will have skill, wisdom, compassion and clarity as they care for my little boy.
My heart is really heavy concerning Maggie. Spina bifida does …