Skip to main content


Baby Maggie is home.  We are loving having our new addition.  The kids can't keep their hands off of her.  Josie gives a play by play of every grunt, wriggle and eye opening.  Kate is so aware of her needs and runs all over the house grabbing diapers, new outfits and ice water for her Momma.  The night we brought her home, Davey held her and said, "Look.  It's wonderful!  She can wiggle her toes!"  He said it over and over, not realizing the full impact of those words.

The hardest part is cathing her.  We do it three times a day.  It takes both Matt and I working together, and we have to keep everything sanitized.  Matt is much better at it than I am, but I'm getting there.  We added up how many catheters we will go through in a year between Maggie and Davey.  The number was close to 2,900!  Our spina bifida support group friends say it gets easier, but when?

The best part is smelling her sweet skin.  Now that her swelling has gone down and she's out of the hospital, she looks like a happy baby.  We delicately hold her as to not put pressure on her back and hate to let her go.

Within a few short days, she will be back in the hospital.  Gulp.  The patch is separating from her skin, and the plastic surgeon and neurosurgeon say surgery is necessary to close up the skin.  We will hopefully find out today when the surgery is scheduled. I'm grateful to have these few days of happy before we head back to the hospital.

My parents and brother have gone back to Texas.  They left early this morning.  I've lived away from home for fourteen years, but it never gets easier to say goodbye.  When they are here, my life is richer and more complete.  Plus, a ham sandwich always tastes better when your mom makes it.

These will be Maggie's first words. 

Her spiffy car seat.

Meeting Great Grandma Peterson.

 Helping Papa give Quincey a bath.

Tatum, Aunt Lesa and Uncle Ryan

 Celebrating Pioneer Day with fireworks.

McCall and Hattie.  Saying goodbye is so hard!


  1. Oh Millie, what a beautiful baby! My heart goes out to you for another surgery. We're thinking of you and happy that you have these sweet few days with her. Enjoy that baby smell! Love you guys.

  2. She is so sweet, Mills. And you are amazing.

  3. Maggie is beautiful but I would expect nothing less from the Killpack family. So wonderful to have the babe home and we send much love for the road ahead!

  4. I love Maggie's car seat! :) She is just precious. Hope the surgery happens soon so she can be home again with her family. Our prayers are with you!

  5. We wrap our arms around you once again as Maggie heads for surgery tomorrow. Why did we return to Tex, just isn't right!


Post a Comment

Popular posts from this blog

Building a Utah Valley Parade of Home

Our home is complete (mostly), and we are thrilled!  It makes my heart flutter every time we pull up. This home is the fulfillment of a dream, full of beauty and accommodation.  Davey zooms up and down the ramps with freedom.  We all have our "favorite parts" of the home, and I can't narrow mine down to one.

The Parade of Homes is happening now, and every day I get questions from friends, family and strangers asking about the parade process and where we purchased things.  I'll answer some of them on the blog.  Keep in mind, this is just our experience.  I'm sure it is different for everyone.

Why did we build a parade home?  ·Some of the subcontractors offered a discount price because their products or work would be featured.  It doesn’t necessarily mean it is cheaper to build a parade home, but it is possible to get more for your money.  For example, appliances.  We wouldn’t normally buy Bosch appliances, but with parade discounts the fancier appliances were the …

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten.

Speaking of surgery, we are still in limbo for Maggie's surgery...ETV-CVF.  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do!  This little Ma…

Cross-eyed Cuteness

Written by Matt.

We've had lots of appointments this week.

Thursday:  Millie and Maggie went to the Primary Children's in Riverton for an ultrasound on the kidneys and brain for Maggie.  Everything looked good. 
Friday:  Maggie's first follow up since her shunt surgery.  To us, she seems to be doing quite well except for her eyes crossing.  But as soon as the neurosurgeons saw Maggie, they said she needed to get an MRI.  He felt that it was urgent enough to do the scan that same day, but Millie was too sick to stay at the hospital and was lucky to drive home without crashing.  If you’ve never heard Millie crow up,  you’re missing out (it’s a mix between coughing and throwing up).  And we did an ultrasound on Davey's kidneys that day.  
Saturday:  The MRI.  Millie was still too sick to go to the hospital, so just Maggie and I went.  Maggie was charming as usual even on the required empty stomach and made instant friends with all the nurses and technicians.  I stayed wi…