Maggie has been transferred to Primary Children's. She is now in the NICU over there and was "Life Flighted" across the walkway between the two hospitals. The same thing happened to Davey four years ago when he was born. It sounds so glamorous but really just entails two Life Flight pilots walking Maggie across in a special incubator case thingy. They were able to wheel her over to see Millie before they left the U and the kids had just arrived so the timing was perfect. Maggie seems to be progressing and they will continue to monitor her lungs and breathing in the coming days. We may start to find out more about her ventricles etc. tomorrow but we'll just take it a day at a time. Millie doesn't get any cell service at the U so she hasn't been able to respond to any voicemails or texts. Her pain is being managed and she is doing great. She misses Maggie though, and hopes I can take her over to see her new daughter later tonight.
Last time I was at Shriners, one of the doctors asked if I had checked my folic acid levels after having Davey. I responded that I'd never heard of anything like that and had not checked them. The doctor then proceeded to say she had spoken with a geneticist about our family...two kids with spina bifida. The geneticist said that I most likely don't metabolize folic acid properly, so that's why my last two children have spina bifida. In summary, they thought that if I had checked my folic acid levels after Davey, I would have seen that something was wrong and could have prevented Maggie from having spina bifida. As I listened to these burning words, I thought, "Do you know what you're saying?" I turned away, bounced with Maggie, and wiped my tears. I'm often asked about folic acid. It's an integral part of spina bifida prevention , and I should lecture about how everyone should take their folic pills. But I'm not in t...


Look at your cute family. I love hearing about your little Maggie. And I love how she was "life flighted" down the hall. Thanks for all the updates.
ReplyDeletewell that was fast! Good job getting her over there. Can't wait for more cute baby pictures:)
ReplyDeleteWe did Life Flight the day JB was born, except it was an ambulance that took him to the other hospital. Makes for an interesting story later, but I think you have enough of those. :) I'm glad they were able to get her transferred. Again, she is beautiful.
ReplyDeleteVery Good Job and cute baby also...
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