Skip to main content

Surgery Part Deux

Maggie's back is not healing well.  On Sunday we noticed that it was separating in the middle where the skin is stretched the most.  Each day, the middle opens more and more. On Tuesday morning, we took Maggie to Primarys to have the plastic surgeon look at it.  He was concerned, but still had hope that it would heal itself.  Later that day, it looked even worse!  Then stitches started coming detached and yellow pussiness oozed out!  So today we ran up to Primarys again and the plastic surgeon said it is infected.  We're hoping that the high dose of antibiotics will clear up the infection by Monday.  That's when we will have another surgery to close up the opening.  We hope this will work and her back will finally heal.  But we are skeptical.  How will restitching it make it stay closed when it didn't work the first time?  The doc reassures us that it is just the top layer that they'll have to redo, and since it won't be infected, it will heal properly.  Still skeptical.   

Our little trooper also has a UTI...Urinary Tract Infection.  On Tuesday when we were cathing her, we noticed it was very cloudy.  We hope the antibiotics will clear this up too.  But why did it happen in the first place?  We are so careful to make everything sterile during her 3 times a day cathing.  

Between her back and UTI, she is in pain!  We try to make her more comfortable with regular doses of Tylenol.  Maggie handles it all very well.  We keep reminding ourselves that everything will be fine.  We've asked a couple of questions to a Facebook group for spina bifida parents who went through the in utero surgery.  We gets replies of horror stories from other moms, so we try to stay calm.  We remember that Maggie has a Father in Heaven who is aware of her little body and spirit.  He will perfectly take care of her, even when we and the doctors cannot.    

Good news:  Maggie has gained a pound since birth, and looks adorable in her clothes (she's more than just a scar :)

Here's a progression of her wound.  If you have a queezy stomach, don't look!


Sunday


Monday


Tuesday


Wednesday


Thursday







Comments

  1. She IS adorable just as herself :) I like her light fuzzy hair, and it seems like her fingers are so long and pretty. Good luck with all :)

    ReplyDelete
  2. Oh, she's adorable!! Keep hangin' in there!

    Angee :)

    ReplyDelete
  3. I wish I could squeeze her into my shoulder...bet you do too., I'm sure! This angel continues to keep us prayerful, dependent, and merciful. Thank you Maggie for keeping us focused and humble. You are an inspiration.

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten.

Speaking of surgery, we are still in limbo for Maggie's surgery...ETV-CVF.  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do!  This little Ma…

Building a Utah Valley Parade of Home

Our home is complete (mostly), and we are thrilled!  It makes my heart flutter every time we pull up. This home is the fulfillment of a dream, full of beauty and accommodation.  Davey zooms up and down the ramps with freedom.  We all have our "favorite parts" of the home, and I can't narrow mine down to one.

The Parade of Homes is happening now, and every day I get questions from friends, family and strangers asking about the parade process and where we purchased things.  I'll answer some of them on the blog.  Keep in mind, this is just our experience.  I'm sure it is different for everyone.

Why did we build a parade home?  ·Some of the subcontractors offered a discount price because their products or work would be featured.  It doesn’t necessarily mean it is cheaper to build a parade home, but it is possible to get more for your money.  For example, appliances.  We wouldn’t normally buy Bosch appliances, but with parade discounts the fancier appliances were the …

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed.

Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to act brave and wait until the car ri…