I asked Matt what to write for the post. This was his reply, "Surgery went well. Blah, blah blah." He's so eloquent. The plastic surgeon, Dr. Faizi Siddiqi, said things seem good. Now that the infection is gone, the back will hopefully heal in a couple weeks. The grossest part is the two drainage tubes coming out of her back. I love little Maggie, but those tubes stretch my limits of affection. Every time we move her, it looks like they are going to slide out. She'll have them in for a couple days to drain any puss/fluids that might build up under her skin.
It's tough to see her corded up again. Of course we can handle it, but it's hard. And she needs a bath! She's never had one and it's starting to catch up with her.
My hope is that our posts are helpful for other families with spina bifida kids. Reading other blogs has been a great resource for us. When your pregnant with a child with spina bifida, it's hard to know what to expect. That's why I'm okay sharing the pics of Maggie's back. Maybe it will help another mom who loses sleep wondering about future.
Time for another date at the Rainbow Cafe. Where's my lip gloss?
It's tough to see her corded up again. Of course we can handle it, but it's hard. And she needs a bath! She's never had one and it's starting to catch up with her.
My hope is that our posts are helpful for other families with spina bifida kids. Reading other blogs has been a great resource for us. When your pregnant with a child with spina bifida, it's hard to know what to expect. That's why I'm okay sharing the pics of Maggie's back. Maybe it will help another mom who loses sleep wondering about future.
Time for another date at the Rainbow Cafe. Where's my lip gloss?
Waiting room. We only got three hours of sleep last night.
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Poor, little Maggie. She just looks so precious lying there. She's already been through so much in her short little life. I hope her back heals quickly and that she can start to have a more normal life as a baby, or as normal a life as a spina bifida baby can have anyway.
ReplyDeleteProbably shouldn't have read this while eating my lunch...on the other hand it could work as a good dieting tactic;)
ReplyDeletePoor Maggie. That is a huge scar! But I am so glad that things went well. I agree--the drainage tubes are hard to look at. We were glad when Seth got rid of his. We will continue to pray for you!
ReplyDeleteI love that you're sharing your journey with all the rough patches you're going through! I love reading about people's REAL lives! You guys are truly amazing and we keep you all in our prayers!
ReplyDeleteThanx for the update, Millie! I love her sweet little face.
ReplyDeleteAngee :)
oh, sweet, sweet little baby. i can't wait to meet her! I love that she looks so much like Josie from her profile pic. I hope she heals quickly and you get some rest!!!
ReplyDeleteLittle Maggie is so such a trooper! I am so impressed with how strong she is. So glad she is healing. Hugs!
ReplyDeleteI love seeing Maggie. As she gets older nobody will even see or know she even has a scar since she is a girl. I had stitches on my face once and it looked way worse than after it was healed. The after-stitches will look way better. She has the cutest profile!
ReplyDeleteShe is so very very precious! I am Abbie's mom (soon to be baby Ava's Grandmother) and seeing baby Maggie and her journey gives us a little insight as to what to expect Monday the 13th.
ReplyDeleteThank you for your brave candor. She's beautiful!
i heard about maggie's story from my friend hilary and asked her how little maggie is doing and she send me a link to your blog.
ReplyDeletei just read over your posts about the surgeries and everything in between. great to hear everything went well. this adorable little angel sure went through a lot in her young life so far. hopefully she will heal fast and recover from her surgery.
greetings from all the way from germany.
Millie, I'm a fellow Utah fetal surgery mom--now recovering in the hospital in San Francisco--and I definitely love reading Maggie's updates on your blog. This is my first child and it really is helpful to read about others' SB experiences to prep my mind for what to expect (even though I know everyone is so different). Your family is always in my thoughts. Thanks for sharing your story!
ReplyDeleteWe saw Dr. Siddiqi too for Ryan's head. He was vacuumed out and had a "crunchy" spot on his head. (I don't know how else to describe it.) Ryan didn't end up needing to have surgery but he's a great doctor and we really liked him. I love reading the updates on Maggie. You guys are such an inspiration. We'll keep her in our prayers.
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