Skip to main content

Baby Got Back

On Sunday, Maggie's back wound started to open up again. Sad. By Monday, the opening was wider. Today we went to the plastic surgeon at Primary's. He said he's never had this happen before. Two surgeries and it still didn't take! Maggie has never been a statistical norm, so why start now? They took out the stitches on her back because they weren't doing any good. So now she's left with an open wound. We will clean it throughout the day and apply a gauze with sodium chloride to it. This will hopefully absorb the goop and help it to heal. So for now she is still on her tummy and without a bath. We pray that her opening doesn't get deeper or wider. The docs say it could take months for it to heal completely. Which means I'll cancel my trip to Houston to show off Maggie to the fetal surgery team.

I can't believe summer is ending. Matt will actually go to work each day :( Our little family will never have another summer like this. Thank goodness! In the coming years, we will fill our summers with vacations, household projects, real estate, reunions, movies, camping, and BBQs. I'm sure we will make many wonderful memories, but they will pale in comparison to the summer of 2012. We are forever changed.

 

Comments

  1. You've been on my mind the last 2 days. And now I know why. Love you guys! And oh! that picture! Precious!

    --Angee :)

    ReplyDelete
  2. Oh, Millie I am sorry. You all are in my prayers. She is so cute...kinda reminds me of your Mom for some reason...does anyone else see that? Love to you all.

    ReplyDelete
  3. So sorry that you guys have to keep enduring through all of this. She is just so adorable! Hope and pray all will get better soon. Love ya!

    ReplyDelete
  4. I'm so sorry that it hasnt healed yet. She truely is a miracle baby and so Beautiful!

    ReplyDelete
  5. What a bummer! Sorry about Maggie's wound not healing properly and sorry that school is starting, but what an amazing picture of Maggie! We're always thinking and praying for you. Let's hope the school year is a little calmer than your summer.

    ReplyDelete
  6. So sorry to hear the news. :( I hope she heals without any more infections.

    She looks so beautiful in her pic!

    ReplyDelete
  7. Yes,she does look like Millie's mom!...otherwise known as Hattie. do hope that her precious little back will do some good healing this week.

    ReplyDelete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to a...

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy