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Channel 2 is doing a one year follow-up story to our fetal surgery. Matt and I aren't a fan of the coverage, but we believe the news stories had a large influence in our insurance covering the surgery.  So we are grateful for them, and we hope the new story shows the joy we have as a family.

I'm nervous about 4 things.  1st, coming across like our life is soooo hard because of two kids with spina bifida. We wouldn't have it any other way, and most days are fine and dandy. 2nd, sounding like fetal surgery is the best option for everyone. Obviously we don't believe this because we chose not to have the fetal surgery with Davey.   Sometimes things can come across different when hours of footage is condescend into a two minute story.  3rd, the perception that fetal surgery is a cure for spina bifida. It's not.  4th, I feel uncomfortable with all the comparisons between Maggie and Davey. They are who they are.

Well, let's see how it goes.  All I know is that I had a big zit that I saw after the interview.  If you want to watch, it will air on Channel 2 at 5 & 6.

Channel 4 is planning on doing a story this Friday or the next.

Here's the latest stories:

KUTV 2--

ABC 4--

FOX 13--


  1. Millie,

    My name is Matt Koyle. My wife is pregnant and our little boy has been diagnosed with spina bifida. We are currently looking to have the prenatal surgery. We have been searching for someone that has had the surgery to be able to talk to. If you don't mind talking to us my email is Your kids are so cute.

    Thank you

    Matt Koyle

  2. See Mill....this is why you do the coverage! Maggie was darling & I thought the story came across well, despite the comparisons, which I also noted.

    1. Heather, thanks. Matt's comment above is definitely why we do the story. I really disliked all the comparing between Davey and Maggie. But, it's over!

  3. Hey aunt Mill saw the video this morning looked good and I couldn't find any zit:)
    Everyone looked so cute especially Maggie.

  4. Millie, I watched the coverage and...I didn't see any zits. You guys looked amazing as always, and I think they did a tasteful job. Hopefully that will be the last coverage for you, although we always enjoy watching you on tv. :)

  5. I'm obviously VERY biased here, but I think the story that airs tonight at 10 on ABC 4 will be WAY BETTER! :) Tune in and let me know what you think, Mil.


    PS - I still haven't seen Channel 2's story... ;)

  6. I'm obviously VERY biased here, but I think the story that airs tonight at 10 on ABC 4 will be WAY BETTER! :) Tune in and let me know what you think, Mil.


    PS - I still haven't seen Channel 2's story... ;)

  7. Wow that was odd. I just wrote an very long comment but after I clicked submit my comment didn't appear. Grrrr... well I'm not writing all that over again.
    Anyway, just wanted to say excellent blog!

    Also visit my blog post :: best golf instruction books

  8. You're right, to take a story into 2 minutes doesn't really say much but I think a positive thing from something like this is awareness. Getting the word out about it and finding others who can find support from your story. Goodluck and wish you the best!


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