Skip to main content

More News Stories

Channel 2 is doing a one year follow-up story to our fetal surgery. Matt and I aren't a fan of the coverage, but we believe the news stories had a large influence in our insurance covering the surgery.  So we are grateful for them, and we hope the new story shows the joy we have as a family.

I'm nervous about 4 things.  1st, coming across like our life is soooo hard because of two kids with spina bifida. We wouldn't have it any other way, and most days are fine and dandy. 2nd, sounding like fetal surgery is the best option for everyone. Obviously we don't believe this because we chose not to have the fetal surgery with Davey.   Sometimes things can come across different when hours of footage is condescend into a two minute story.  3rd, the perception that fetal surgery is a cure for spina bifida. It's not.  4th, I feel uncomfortable with all the comparisons between Maggie and Davey. They are who they are.

Well, let's see how it goes.  All I know is that I had a big zit that I saw after the interview.  If you want to watch, it will air on Channel 2 at 5 & 6.

Channel 4 is planning on doing a story this Friday or the next.

Here's the latest stories:

KUTV 2--http://www.youtube.com/watch?v=v-yMi5p0oUE&feature=youtu.be

ABC 4--http://www.youtube.com/watch?v=eI3wHHvQ98E&feature=youtu.be

FOX 13--http://www.youtube.com/watch?v=ZCktCPWxveg&feature=youtu.be

Comments

  1. Matt KoyleApril 29, 2013 at 4:29 PM

    Millie,

    My name is Matt Koyle. My wife is pregnant and our little boy has been diagnosed with spina bifida. We are currently looking to have the prenatal surgery. We have been searching for someone that has had the surgery to be able to talk to. If you don't mind talking to us my email is matt.koyle@gmail.com. Your kids are so cute.

    Thank you

    Matt Koyle

    ReplyDelete
  2. HeatherApril 29, 2013 at 7:07 PM

    See Mill....this is why you do the coverage! Maggie was darling & I thought the story came across well, despite the comparisons, which I also noted.

    ReplyDelete
    Replies
    1. Millie KillpackApril 29, 2013 at 8:37 PM

      Heather, thanks. Matt's comment above is definitely why we do the story. I really disliked all the comparing between Davey and Maggie. But, it's over!

      Delete
  3. Bailey RindlisbacherApril 30, 2013 at 4:25 AM

    Hey aunt Mill saw the video this morning looked good and I couldn't find any zit:)
    Everyone looked so cute especially Maggie.

    ReplyDelete
  4. elshmobelshMay 6, 2013 at 10:01 PM

    Millie, I watched the coverage and...I didn't see any zits. You guys looked amazing as always, and I think they did a tasteful job. Hopefully that will be the last coverage for you, although we always enjoy watching you on tv. :)

    ReplyDelete
  5. TxnewsgirlMay 14, 2013 at 7:16 PM

    I'm obviously VERY biased here, but I think the story that airs tonight at 10 on ABC 4 will be WAY BETTER! :) Tune in and let me know what you think, Mil.

    Kim

    PS - I still haven't seen Channel 2's story... ;)

    ReplyDelete
  6. TxnewsgirlMay 14, 2013 at 7:17 PM

    I'm obviously VERY biased here, but I think the story that airs tonight at 10 on ABC 4 will be WAY BETTER! :) Tune in and let me know what you think, Mil.

    Kim

    PS - I still haven't seen Channel 2's story... ;)

    ReplyDelete
  7. AnonymousMay 14, 2013 at 11:46 PM

    Wow that was odd. I just wrote an very long comment but after I clicked submit my comment didn't appear. Grrrr... well I'm not writing all that over again.
    Anyway, just wanted to say excellent blog!

    Also visit my blog post :: best golf instruction books

    ReplyDelete
  8. MikeMay 15, 2013 at 2:19 AM

    You're right, to take a story into 2 minutes doesn't really say much but I think a positive thing from something like this is awareness. Getting the word out about it and finding others who can find support from your story. Goodluck and wish you the best!

    ReplyDelete

Post a Comment

Popular posts from this blog

Curve Ball

Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri
24 comments
Read more

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy
27 comments
Read more

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to act brave and wait until the car r
17 comments
Read more