Skip to main content


We went to Shriners yesterday for Davey's new set of and orange this time.  While there, we registered Maggie as a new patient at Shriners.  It felt surreal putting a patient sticker on her too.  I've been apprehensive about this appt. for a couple weeks wondering if Maggie would need orthopedic care.  The doctor checked her out, head to toe, and everything looks perfect.  AMAZING!  While Davey was getting his new casts on, there was a newborn baby right next to us getting her first set of casts.  I remembered how hard it was four years ago to hold my new baby with casts.  I wanted to tell that sweet mom, "It gets easier."  But honestly, that's not true.  So instead I said, "Doesn't it just stink to have your baby in casts.  Good thing she is so cute."  Then I gave her tips on how to keep pee from stinking up the casts.

On the way home, Davey and I heard, "Just The Way You Are" on the radio.  He learns all sorts of songs during his bus rides to school.  So we sang these words:

You know, I'd never ask you to change.
If perfect's what you're looking for then just stay the same.
So, don't even bother asking if you look okay.
You know I'll say:
When I see your face, there's not a thing that I would change
Cause you're AMAZING just the way you are.

Amazing cookie by Walmart...simplify.

Amazing clay bracelet.

 Amazing race car driver.

 Amazing cousins.

 Amazing present from Hattie and Papa...decorated lunch sacks.

Amazing birthday bike.

Amazing birthday at the cabin.

 Amazing friend.

 Amazing Rapunzel...not Kate's party.  I'm not that amazing.

Amazing Davey with his first set of casts.  We decorated them...accentuate the positive.

Amazing color combination.


  1. As our texas friends echo: amazing grace! We are so grateful for Maggie's good news. And how we love sharing in the celebrations of all sorts! Dave's casts are my new favorite color combo:)

  2. In just one hour my daughter has fallen in LOVE with your family. Am I surprised-no, not in the least. You are wonderful people. I'm excited she has the chance to get to know you and your kids. I hope you love Maddy as much as I do. She raves about Davie and what a neat kid he is! I wish my family drew people in like yours does.

  3. I just love you Millie. I'm so happy about the latest news for little Maggie! What a roller coaster this spina bifida stuff is, eh? I love that picture of Mandy with Maggie, it's just the cutest! And I love Kate's new bike. Also, I think Davey and I have this super brain wave connection when it comes to his color combos. The first set was pink and green (my wedding colors) and now the orange and blue which were my jr. high school colors. Keep rockin those casts Davey!

  4. Pa...Amazing Grace, so true. Emily...your Maddy is as sweet as they come. We loved having her cheery smile sit with us during church. Thank you for sharing her. It was so nice to be able to change Maggie's diaper without worrying about what the kids were doing on the pew. about a brain connection!

  5. YOU are amazing! Davey's new casts are our families favorite color combo - go Broncos! Thinking about you and praying for you daily. I was recently looking through some of my baby pictures and ran across some of us when we were little. Maggie totally looks like you! It was so fun to compare pictures! Love you!

  6. YOU are amazing! Davey's new casts are our families favorite color combo - go Broncos! Thinking about you and praying for you daily. I was recently looking through some of my baby pictures and ran across some of us when we were little. Maggie totally looks like you! It was so fun to compare pictures! Love you!

  7. Davey, those are the colors in my kitchen! Love them! Such good news about Maggie! Little blessings!
    Love, the Hanna's

  8. Love all those pictures. You're family is truly amazing! Thanks for sharing them with us through this blog. I love those decorated lunch sacks. Kate is so lucky!

  9. Millie you're the best! You are a amazing woman.

  10. I love it when a song I've heard a million times takes on a whole new meaning to me in my life. You are a amazing. That's the word we always use when we are talking about you and Matt. You guys truly are AMAZING!

  11. Exicited Movement for The Family Holder People That want to Share his Personal View in The Blog..I am Happy when We met All Family with each Other Any Type of Location Specially In Our Mom & Father House...


Post a Comment

Popular posts from this blog

Building a Utah Valley Parade of Home

Our home is complete (mostly), and we are thrilled!  It makes my heart flutter every time we pull up. This home is the fulfillment of a dream, full of beauty and accommodation.  Davey zooms up and down the ramps with freedom.  We all have our "favorite parts" of the home, and I can't narrow mine down to one.

The Parade of Homes is happening now, and every day I get questions from friends, family and strangers asking about the parade process and where we purchased things.  I'll answer some of them on the blog.  Keep in mind, this is just our experience.  I'm sure it is different for everyone.

Why did we build a parade home?  ·Some of the subcontractors offered a discount price because their products or work would be featured.  It doesn’t necessarily mean it is cheaper to build a parade home, but it is possible to get more for your money.  For example, appliances.  We wouldn’t normally buy Bosch appliances, but with parade discounts the fancier appliances were the …

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed.

Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to act brave and wait until the car ri…

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten.

Speaking of surgery, we are still in limbo for Maggie's surgery...ETV-CVF.  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do!  This little Ma…