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About Get Used to the Stairs

My Life and Family:
I am a wife and a mother to four kids.  Our son and our youngest daughter have spina bifida.  When we found out in March 2008 that our son had spina bifida, we reached out to other families who had kids with SB.  A mom shared with me something she was told, "Get used to the stairs/stares."  Over the years, we have come to understand what that means.  It's an interesting process, and our hope is that by writing our experiences, we can connect with other families and share our spina bifida journey.

The Media Coverage:
We never expected to have the media follow our story.  But because of their influence, we were able to get the fetal surgery covered by our insurance.  There are many aspects about the news stories that make me cringe:  my voice, comparisons between Davey and Maggie, my plump face, blood, referring to spina bifida as a "disease", summing up our lives in 2 minutes, BUT my hope is that the coverage will do some good.

Insurance Battle Part 1--ABC4

Insurance Battle Part 2--ABC4

Insurance Fight Good News--KUTV2

Insurance Fight Good News--ABC4

Del Taco Fund Raiser--KUTV2

Fetal Surgery--KUTV2

Maggie's Birth--KUTV2

YouTube link to Maggie's Birth:

Miracle League Follow-up

ABC4 One Year Follow-Up:

KUTV2 One Year Follow-Up:

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Shunt Happens

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