Skip to main content

Yellowstone, Skating, Aqua Shoes & Pony Rides

We celebrated the 4th of July in Yellowstone.  The paved paths make it a great destination for wheelchairs.  The only time we left the paved area was to swim in the Firehole River.  I carried Davey down the short but steep path and biffed it, lesson learned.  We stayed at the Old Faithful Inn which provided scenic views of the geyser from our bedroom and also our favorite past time...searching for the ghosts that haunt the hotel such as the Headless Bride.  The scariest sight was Maggie's face after she was bitten by a few blood thirsty mosquitoes.  It swelled up and required a trip to the clinic for medication.  Our trip was a slow paced, beautiful vacation.






Next up was Davey's seventh birthday.  He invited a few friends to join him at Classic Skate for a night of grooving at the rink.  While the other kids got tired, injured, thirsty, or bored, Davey could "skate" all night.  He is lucky to have such good friends!  I can't believe it's been seven years since he entered this world and changed it for the better.



I have a history of unwrapping some of the most sentimental gifts from Matt.  On occasion, I am brought to tears by his love shown through his gift giving.  Last Sunday, I was brought to tears again when I opened my birthday presents.  When I unwrapped the first box, I beheld a pair of orthopedic Sketchers.  My subdued giggles turned to uncontrollable laughter which escalated to tears.  It was bad.  The next present was really comfy pants that I'm sure are fitting for all 35 year olds.  Again, the laughing tears flowed.  His next attempt to spruce me up was a tube of my favorite lipstick, except it was three shades lighter than my skin tone.  I was looking pretty fancy with my old lady shoes, sweatpants and ghost lipstick.  I haven't laughed/wept that hard in ages!  Thank you Matt for letting me mock your gifts and giving me the greatest gift...laughter.  Thank goodness you always hang on to the receipts.  To be fair, he also gave me some presents that were perfect, but ten years from now I won't remember them like the aqua shoes that will forever be engraved in my memory.




On Maggie's birthday, she was a bit of a whiny bum, so I decided to look through her baby pics to remind myself of my love for her.  I watched this news story about her birth.


It's okay.  Some of the words used like "disease" make me cringe.  But Maggie is and was perfect, and I adore the footage of her.  Watching the story reminds me of a phrase Matt and I often say when we talk about years gone by, "We were so young back then."  We had no idea what life would hold for our sweet Mags.  The wounds, surgeries, disappointments, infections, and daily struggles that would be hers and ours.  Even with sensation in her legs and feet, everything about our Maggie's development is delayed, except her heart and love of chips and salsa.  Nope, she doesn't walk.  Maybe she never will, and I can say that with peace and joy.  Here's a great quote, "Joy is more than happiness.  Joy is the ultimate sensation of well-being.  It comes from being complete with our Creator and his eternal laws." (Elder Dallin H. Oaks)  

We celebrated Maggie's birthday by doing the Walk for Love at Shriner's Hospital.  Then later that night, we gathered at the park with for pizza, pinata, presents, and pony rides.  I think she felt loved, happy, and special.  







After putting the kids to bed last night, Matt and I listened to this talk by Elder James E. Faust given in 1984.   https://www.lds.org/general-conference/1984/10/the-works-of-god?lang=eng  It added to our already full hearts.  Many of the people who read our blog are not Mormon, but if you have a few minutes, don't let that stop you from listening to this man's words.  They are timeless truths that apply to us all.

Comments

  1. Hi i'm search for shoes beach but really this he explaine anything of aqua shoes beauthiful family baby water shoes

    ReplyDelete

Post a Comment

Popular posts from this blog

Curve Ball

Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to act brave and wait until the car r