Skip to main content

Come Stop Your Crying

Maggie is an interesting little lady.  Kate discovered that every time she sang this song, Maggie would get distressed.  Now it's our favorite family past time.  http://www.youtube.com/watch?v=kd2QgViFGuw&feature=youtu.be


As far as spina bifida stuff, it's still thriving.  Maggie has been plagued with UTIs for months now.  We've tried all sorts of antibiotics and fancy catheters...no cure yet.  Her vision prescription has gotten better, so we are ordering two pairs of glasses.  I don't fancy the selection for baby girls...too pink.  So she'll be a fashion star in tortoise shell and blue frames.  Yesterday, Maggie rolled over twice by herself.  A wonderful accomplishment for my little lump of a lady.  But it's tough not to get discouraged by the slow progress.

Davey has a surgery scheduled in January to realign his legs.  Right now his legs turn inward and he trips over them as he walks.  Hopefully the docs can fix this.  I know surgeries stink, but I consider it a blessing.  Because Davey is a mover, he needs surgeries to keep him active.  So bring on the surgery!


Comments

  1. The UsletonsNovember 5, 2013 at 3:41 PM

    Ok, first of all, the songs to Maggie are sadly hilarious! When Brody was a baby, he loved Yo Gabba Gabba, but there was one song that made him cry every time we sang it. It was so funny - and we made it our family past time as well. Great times! Thanks for sharing! Miss you, friend!

    ReplyDelete
    Replies
    1. Millie KillpackNovember 5, 2013 at 7:18 PM

      Becky, that's too funny! We'll see you at Christmas. Miss you too.

      Delete
  2. UnknownNovember 5, 2013 at 4:29 PM

    First of all, your kids are so darn cute! It sounds like both Maggie and Davey are doing pretty good, in spite of the spins bifida. I know, very well, that both UTI's and surgeries stink. I pray that the doctors find something to help Maggie & that Davey's surgery goes well. Give them BOTH a BIG HUG from me.

    ReplyDelete
    Replies
    1. Millie KillpackNovember 5, 2013 at 7:20 PM

      Scott, if anyone knows the pain, it's you! Hope to see you at Christmas.

      Delete
  3. PaNovember 5, 2013 at 6:47 PM

    Well its obvious that Maggie has a discerning ear! So precious....maybe a little torturous (?). Love that little lady!

    ReplyDelete
  4. UnknownNovember 5, 2013 at 7:00 PM

    Is Davey having his surgery at Shriners or PCMC?
    Carry on Millie...you're doing great!

    ReplyDelete
    Replies
    1. Millie KillpackNovember 5, 2013 at 7:21 PM

      Shriners. We love that place. Y'all go there too, right? Thanks for the encouragement. Hope to see you at the bowling activity coming up.

      Delete
  5. Isaiah and JennaNovember 5, 2013 at 8:23 PM

    I'm laughing and crying and watching this movie on repeat. SO funny! I can totally understand how slow progress is discouraging but I just don't see how to be upset at all when you have such cute and funny kids. I love your family!!

    ReplyDelete
  6. Natalie OckeyNovember 5, 2013 at 8:31 PM

    Randy and Maggie obviously have the same taste...he hates Phil Collins too! I am still wiping the tears from laughing so hard. Thanks for sharing.

    ReplyDelete
  7. BeccaNovember 6, 2013 at 2:13 PM

    Cutest thing EVER!!!

    ReplyDelete
  8. BozieNovember 6, 2013 at 3:58 PM

    this is so funny!! ethan always cried when we sang 'o sole mio. it really did make us sing it all the more;)

    ReplyDelete
  9. StephanieNovember 18, 2013 at 4:16 PM

    That was too cute!!

    ReplyDelete
  10. Mary EvelynNovember 19, 2013 at 8:02 PM

    So hilarious! That video-- I love it. I found your blog because you posted on my contact page. Glad we could say hello to each other!

    ReplyDelete
    Replies
    1. Millie KillpackNovember 19, 2013 at 8:33 PM

      Thanks for saying hi. I'll be keeping up with you and yours now.

      Delete

Post a Comment

Popular posts from this blog

Curve Ball

Maggie is out of surgery. Things did not go as planned. As the doctor put it, "she threw us for several curve balls." We could not do the ETV. Once in her brain, he discovered that it would be too risky to proceed because of her anatomy. From what we remember, her pituitary was too close to an artery. As they were pulling out, a blood vessel burst. They had to get that bleeding under control before sewing up that side of her head and cutting open the opposite side for a shunt. That's when the neurosurgeon called us to tell us the disappointing news that the ETV wouldn't work. He said he'd come back to visit us in 45 minutes once the shunt was placed. We always knew this was a possibility, but were told her anatomy was "perfect" for the ETV. Guess you can't judge a book by its cover, even with an MRI. Shunt surgeries are common, and it is rare to have serious complications. But two agonizing hours later, we were told what happened. Duri
24 comments
Read more

She's Here!

The c-section went beautifully, Maggie was delivered at 10:17. She's 6 lbs 13 oz and has a smattering of Davey's hair, my chin, Millie's voice, Kate's ears, and Josie's temperament. Her lungs seem pretty immature so she's in the Newborn ICU for now. Millie is back in her pre-op room and has not yet been able to really see Maggie. Immediately after delivering her the doctors whisked Maggie into the NICU in the adjoining room. I've been able to see her in there and have shown Millie the pictures. The lesion on her back looks good--it looks like a patch of skin covering what used to be the hole that was there. Her feet don't have any noticeable clubbing and she definitely has more sensation there than Davey did. We are so grateful that she is here.     Posted with Blogsy
27 comments
Read more

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to act brave and wait until the car r
17 comments
Read more