Skip to main content

Come Stop Your Crying

Maggie is an interesting little lady.  Kate discovered that every time she sang this song, Maggie would get distressed.  Now it's our favorite family past time.  http://www.youtube.com/watch?v=kd2QgViFGuw&feature=youtu.be


As far as spina bifida stuff, it's still thriving.  Maggie has been plagued with UTIs for months now.  We've tried all sorts of antibiotics and fancy catheters...no cure yet.  Her vision prescription has gotten better, so we are ordering two pairs of glasses.  I don't fancy the selection for baby girls...too pink.  So she'll be a fashion star in tortoise shell and blue frames.  Yesterday, Maggie rolled over twice by herself.  A wonderful accomplishment for my little lump of a lady.  But it's tough not to get discouraged by the slow progress.

Davey has a surgery scheduled in January to realign his legs.  Right now his legs turn inward and he trips over them as he walks.  Hopefully the docs can fix this.  I know surgeries stink, but I consider it a blessing.  Because Davey is a mover, he needs surgeries to keep him active.  So bring on the surgery!


Comments

  1. The UsletonsNovember 5, 2013 at 3:41 PM

    Ok, first of all, the songs to Maggie are sadly hilarious! When Brody was a baby, he loved Yo Gabba Gabba, but there was one song that made him cry every time we sang it. It was so funny - and we made it our family past time as well. Great times! Thanks for sharing! Miss you, friend!

    ReplyDelete
    Replies
    1. Millie KillpackNovember 5, 2013 at 7:18 PM

      Becky, that's too funny! We'll see you at Christmas. Miss you too.

      Delete
  2. UnknownNovember 5, 2013 at 4:29 PM

    First of all, your kids are so darn cute! It sounds like both Maggie and Davey are doing pretty good, in spite of the spins bifida. I know, very well, that both UTI's and surgeries stink. I pray that the doctors find something to help Maggie & that Davey's surgery goes well. Give them BOTH a BIG HUG from me.

    ReplyDelete
    Replies
    1. Millie KillpackNovember 5, 2013 at 7:20 PM

      Scott, if anyone knows the pain, it's you! Hope to see you at Christmas.

      Delete
  3. PaNovember 5, 2013 at 6:47 PM

    Well its obvious that Maggie has a discerning ear! So precious....maybe a little torturous (?). Love that little lady!

    ReplyDelete
  4. UnknownNovember 5, 2013 at 7:00 PM

    Is Davey having his surgery at Shriners or PCMC?
    Carry on Millie...you're doing great!

    ReplyDelete
    Replies
    1. Millie KillpackNovember 5, 2013 at 7:21 PM

      Shriners. We love that place. Y'all go there too, right? Thanks for the encouragement. Hope to see you at the bowling activity coming up.

      Delete
  5. Isaiah and JennaNovember 5, 2013 at 8:23 PM

    I'm laughing and crying and watching this movie on repeat. SO funny! I can totally understand how slow progress is discouraging but I just don't see how to be upset at all when you have such cute and funny kids. I love your family!!

    ReplyDelete
  6. Natalie OckeyNovember 5, 2013 at 8:31 PM

    Randy and Maggie obviously have the same taste...he hates Phil Collins too! I am still wiping the tears from laughing so hard. Thanks for sharing.

    ReplyDelete
  7. BeccaNovember 6, 2013 at 2:13 PM

    Cutest thing EVER!!!

    ReplyDelete
  8. BozieNovember 6, 2013 at 3:58 PM

    this is so funny!! ethan always cried when we sang 'o sole mio. it really did make us sing it all the more;)

    ReplyDelete
  9. StephanieNovember 18, 2013 at 4:16 PM

    That was too cute!!

    ReplyDelete
  10. Mary EvelynNovember 19, 2013 at 8:02 PM

    So hilarious! That video-- I love it. I found your blog because you posted on my contact page. Glad we could say hello to each other!

    ReplyDelete
    Replies
    1. Millie KillpackNovember 19, 2013 at 8:33 PM

      Thanks for saying hi. I'll be keeping up with you and yours now.

      Delete

Post a Comment

Popular posts from this blog

At The Moment

Josie was reluctant to go to school today.  Friday was her "worstest day ever" of kindergarten.  According to her account, nobody would play with her at recess.  "I would ask different girls but they said they wanted to play with somebody else."  Then on the bus ride home, a girl kept pulling her pigtails, sang a mean song making fun of her and yanked her backpack.  I asked Josie how she reacted.  Her response, "I just sat in the corner."   When Matt heard the story he said, "Nobody puts Josie in a corner."  Just like Patrick Swayze.  I think it's easier to say goodbye to a daughter being wheeled into an operating room than watch her venture into the great unknown of kindergarten. Speaking of surgery, we are still in limbo for Maggie's surgery... ETV-CVF .  We are scheduled for this Thursday, but I'll meet with the neurosurgeon on Wednesday and reevaluate whether or not we should proceed.  We don't know what to do...
7 comments
Read more

Flippidy Floo Flah Folic

Last time I was at Shriners, one of the doctors asked if I had checked my folic acid levels after having Davey.  I responded that I'd never heard of anything like that and had not checked them.  The doctor then proceeded to say she had spoken with a geneticist about our family...two kids with spina bifida.  The geneticist said that I most likely don't metabolize folic acid properly, so that's why my last two children have spina bifida.  In summary, they thought that if I had checked my folic acid levels after Davey, I would have seen that something was wrong and could have prevented Maggie from having spina bifida.  As I listened to these burning words, I thought, "Do you know what you're saying?"  I turned away, bounced with Maggie, and wiped my tears. I'm often asked about folic acid.  It's an integral part of spina bifida prevention , and I should lecture about how everyone should take their folic pills.   But I'm not in t...
20 comments
Read more

Shunt Happens

On Thursday night, I couldn't get rid of a nagging concern.  Maggie's eyes were sunsetting.  This is where the  eyes turn downward with the white showing above.  It wasn't constant, and she wasn't showing the typical signs associated with brain swelling.  But the Spirit just kept working at me, and I decided to call the neurosurgeon at Primary Childrens.  He wasn't too concerned and told me to come on Friday for spina bifida clinic.  Once there, the doctor thought it was nothing because Maggie's fontanelle (soft spot) was still soft and of course Maggie wasn't sunsetting for him.  But I didn't want to go to Houston next week until I knew for sure she was okay.  So he ordered a head ultrasound.  Sure enough, the ultrasound showed significant swelling in the ventricles of  her brain.  A shunt is needed. Poor Maggie. I hate to see her go through another surgery.  When I'm at the docs office and get bad news,  I try to a...
17 comments
Read more