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Showing posts with the label Primary Childrens

Awareness Month

The month of October is Spina Bifida Awareness Month.  In honor of this grand event, our family has decided to more fully engage in our devotion to spina bifida.  So far, we've been successful.  I think I need to reassess my goals to fit my life.  Instead of becoming thinner, cleaner, or nicer, I should set the following goals: Drive to the hospital daily Give to the pharmacy weekly Attend surgery monthly Lift weights (Davey) thirty times a day Raise blood pressure Call insurance every other day Forget to pick up kids Mon., Thurs. Listen to talk radio 2 hrs/day Cath, enema, and bath children as little as possible Sleep less Success, I accomplished my goals! Maggie will have the ETV- CPC surgery tomorrow.  Her ventricles are continuing to grow.  We are hopeful this surgery will work like a shunt but will prevent the need for a shunt.  It's amazing how quickly the treatment for hydrocephalus has changed since Davey was born. ...